
The ileak registry℠ is an international online registry for individuals with spinal CSF leak / intracranial hypotension that creates a valuable resource for researchers and clinicians who can analyze its data to better identify patterns, risk factors, complications, and treatment outcomes. We hope that this resource leads to improved understanding, better diagnostic testing and treatments, potential breakthroughs, and additional collaboration in the field.
For more information about how to register, click here.
For Patients
Get Involved
Information collected during this study may be used to help provide opportunities for patients and researchers to collaborate in the patient community.
For Researchers
Drive Research
This is a unique rare disease patient registry. Are you interested in using our data to further your research?
